My daughter's health was a mystery.

I have associated with other mothers mothers, doctors in a pleasure in a pleasure - and identify the rarely genicitous

My daughter, Megggge did in 2012. "She is praying!"One nurse spoke in Singapore Voice.

But when the penatirian comes into, climate change."Pray?"He asked, His voice was sustainable.Nurses and Into the back while Pediatrician distributed the legs of maggie, test how much it can do or bend.

The pediatrician found the rounded soles magically feet."The narrative of genetic conditions can cause the foot shape. Most of them are fatal," she said.

I stared at it, could not prepare the word "deadly" in relation to the brand new person at six pounds that I had taken to this world.

In the next seven days, it was rarely.The Hospital question was miles of questions from the Ronald McDonald's house.I had crossed the mile for families and the history of temptation.Genogoy, Interpix, came from an inner tree and Buroopedics.

Then the resulting outs: you tried forever to fear death.I save me.But he tested a negative test for each other particular.

"Why were his members strong?"I asked him the last doctor before taking out, "We don't only know as a bad person to see how different every person is."

I agree that accepting the difference between my daughter is very important.But I'm worried the doctor has missed something.Over the next two months, I sit in front of a computer, switching to a 50 -page medical chart and a search of terms such as "some shared contractions", "vertical talus", "high curved ceilings" and "micrognathia".

Finally, I discovered photographs of children with similar members in a medical journal, and discovered studies on the plurality of congenital arthritis or AMC.

I found Maggie's new screenshots for students.The state was at least, he said;In his 30-year-old job he met three children who look like my daughter, when his time of military trip.It has sent us to the most special clinic, which is five states in Philadelphia.

"You have a quarter. You haven't seen them yet," he said.

I knew that the trip would be bold from the two years -one brother of a child and Maggie in traction.But for the first time, I had a few answers and I knew where to look for more.

Six months later, Maggie and I felt that the five professionals I received in the first assignment.

Maggie's elbows have been released since the East, but her knees haven't been bent.We have to make a week -old trips to Philadelphia for weeks, so the doctors saw moments a week later, saw moments.

However, we have no diagnosis."What do you think about them?"I'm afraid to save you another one?How are they doing?How can I know what is right?

In the United States, parents from one to the child with the slowest questions, then Maggie's Beneficiary, in the future of "Cathame" and rarely affect and health, and challenges work for the money and health care.

Labroom navigation from anxiety and "If it is, I have dedicated a child, treatment, diagnostics, treatment, diagnosis, treatment, diagnosis, treatment and information for experts.

I have been imagined and set for photos of the maggie.Alissa wolf, mother and nurse, I told me.He scares the duhane Delani was, the drani on the floor as mongie, a robbery in the group.Our daughter have two colors have the most, and good, and phase pieces?Prompts farther than most children.

Dell was three years older than Maggie.For years, I traced Alissa's progress and come out through treatment, surgery and diagnosis.It was a great relief to talk about a great decision.

Maureen Donohoe, a physiotherapist, was also in the group as they worked with many children with Arthronx.They collects patients like maggie and delaney, because they were "different from the others with amc, but they had so much of the same qualities, it was impossible to ignore", she said.

Airs came to passed seminar meeting before attempting to have a group."In the sky, I asked to read a little medical plan for studying the medical map.

After meeting six patients who had these patients, Maureen said, "Doctor Judith Hall, a genetics, scientific, and children, may be a study genetic unusual."After Lov looked at his records, she called me and said," I have 10, "she said.

Connect with Alyysa and Maunge is a big step to identify the state of maggie.but what is next step?

As Maggie developed, its development continued to be significantly different from the development of other children of her age.At the time she was three years old, she could dance, but she was not even treated.Most children of her age with AMC are moving for at least a year.Like Maggie."They make the most beautiful and walk around kindergarten," she said."When they get old, they seem to be more difficult to keep the focus."

There was a big difference.Most built-in.In folk expression.

His first sentences dropped me.

Maggie sitting at breakfast: "I asked lin," I want to play back, and I want to match.Free!"Often, laughter, slow crying, casting out everywhere.

Prior to the year, Maggie used his speaker to ask his food and toys, to complain to a new brother, "beautiful!"In Maggie school frequently, every word that pressed at the end of the study year.

I am surprised that I have Maggie's restrictions and suddenly situations in Ashtopers, I wanted to celebrate his success, but the end of the end was a gap between her and her children.

The isolation of genetic anomaly is the "diagnostic odyssey" to which many families are embarked, Dr.michael Bamshad, head of genetic medicine in pediatrics of the University of Washington."There are all these data that are stuck in medical records. The doctor in a state can know about three similar cases, the doctor in another state could know about five," said Bamshad, "but there are not many ways to find themselves."

Bamadia, his partner, explored the power of social media and their genetic, free genetic information, "family and the clinic can share their genetic information" to share their genetic information.

Alyssa and I enter our daughter's data and hope that more information, but the wait is long and we feel helpless.Alyssa recently described to me as a three -part process: Initially, parents are often very active on social media, try to understand their child and hope to give them a normal life in life as possible.Their development and emphasis on the correction of the problem in problems with puberty through puberty.

Everything can "work great", he said."Parents and most children's development will stop spending you."But "The Agreement section" can come in social media groups such as we, what is the only place to find relationships with friends who know ".

In 2017, Katherine Pol-Fijen, mother and molecular biologist who lives in Dubai used groups on Facebook to communicate with her parents, whose children reminded her daughter Mila.I still didn't know anything about Milu, but she had the same physical features as Maggi, who was five years old at that time.Miles found the difference in the ZC4H2 gene and shortly after birth and shortly after birth.Katherine organized a meeting of doctors and genetics, including Morin and Dr.Bamshad to take current, albeit limited research into account.

Sitting next to Mawreen Pamshad, Maggie, Dellani and other children with photos of the rocker and under the small cheek.

In one year, the infection is confirmed: Maggie also has the ZC4H2 abnormality gene to investigate our childhood.to grow.

An infinitive investigators online investigators for more than 20 years and many other common negotiations, other common negotiations, mental health, mental health.

Bansasad, including normal heart conditions and vaccines, "In addition, it is a rare situation to understand these molecules.

ZC4H2 team has approximately 200 members, even though it is about 250 people with this status have been identified worldwide.Because of their stories I have prepared.In 2023, at the start of the sixth grade, Maggie suddenly presented serious scoliosis and I knew that she would probably need a complete spinal fusion because I had heard about this information with the complications of the complications of the complications of thecomplications of the complications of the complications of the complications of the complications of the complications of the complications of the complications of the complications of the complications of the complications of Izinkinga zezinkinga zezinkinga zezinkinga zezinkinga zezinkinga zezinkinga zezinkinga ezihlobene nezinkinga ezihlobene nezinkingarelated to problems of problems for problems.A surgeon from Maggies, and a list of some surgeons to treat these problems, and create a prevention plan.

MAGGGI's spine, I have a few hours, the hospital drew a weapon for mobile phones, running a room on the other.It has been with 10 plus surgery, I'm imagining or is wrong.

When I was standing in the hallway, I moved encouraging ideas and messages from Asssa, Catherine, and others.We communicated with our various tasks, family tradition, and origin, worked with doctors, scientists, physical and speech - one of another - more than ten - for more than ten - for more than ten -.They did not intend the perfect future for my daughter, but their generosity was a deep gift.

Operating room.His questions were posted behind Taman, I'm afraid, I have been my life and welcome! You are not alone.

The dangerous illness is the account teacher, Codex, and wealth.